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Terms of Use

Use of this site is subject to the following The Frankfort Family Foundation Terms and Conditions. The Frankfort Family Foundation for PKU (“Company”, “We”, “Us”) provides this site and all related information and services including the code (collectively the “Site” or “site”) subject to the full compliance of the terms and conditions of this Use Agreement (“Agreement”). By using the Site, you agree to be bound by these terms and conditions. If you do not agree to these terms and conditions, do not use the Site. You must also be at least 13 years of age to use the Site.

Agreement Reminder: This page is binding

Please read this page carefully. This page states the “Terms and Conditions” under which you may use The Frankfort Family Foundation for PKU.  If you do not accept the Terms and Conditions stated here, do not use this website and service. By using this website, you are showing your acceptance to be bound by the terms of these Terms and Conditions. The Frankfort Family Foundation may revise these Terms and Conditions at any time by updating this page. You should visit this page frequently and or as needed to review the Terms and Conditions, because they are binding. Please note that the terms “You” and “User” as used below refer to all individuals and/or entities accessing this website for any reason.


Use of Material and Information

The contents of this site, such as text, graphics, logos, images, button icons, software and other “material” are protected under both United States and foreign copyright, trademark and other laws.  All Material is the property of The Frankfort Family Foundation or its content suppliers or clients. The collection, arrangement and or assembly of any content on this Website is the exclusive property of The Frankfort Family Foundation. Thus, we require that you retain all copyright, trademark, service-mark and other proprietary notices contained in the original Material on any copy you make of the Material. You may not sell or change the Material or reproduce, display, publicly perform, distribute, or otherwise use the Material in any way for any public or commercial purpose. The use of the Material on any other website or in a networked computer environment for any purpose is prohibited. You shall not copy or adapt the HTML code on our site as it is also protected by The Frankfort Family Foundation’s copyright.


Applicable Laws and this Agreement

You agree to always comply with all and any applicable laws, and these Terms and Conditions.


You are responsible for maintaining your information and password and the confidentiality of this information or any information you obtain through the use of this site. You may not infringe on copyright or other intellectual property rights of others. Information that is suspected of infringing on copyright or other intellectual property rights of others will be removed after a formal complaint is made. The Frankfort Family Foundation is not responsible (in any way) for a User’s misuse or misappropriation of any content or information that you post in any forums, blogs, and other sections of the Site. We also do not in any way guarantee the truthfulness, accuracy, or reliability of communications posted by users or endorse any opinions expressed by users. By using the site you acknowledge that any reliance on material posted by other users, by The Frankfort Family Foundation staff, or the information on the site is 100% at your own risk.

If you believe that your copyrighted work or trademark has been uploaded, posted or copied to The Frankfort Family Foundation and is accessible in a way that constitutes copyright or trademark infringement, please contact us via e-mail at:

The Frankfort Family Foundation,


Our Liability

The Frankfort Family Foundation is just a venue to share information and passion about the search for a cure of PKU. The Frankfort Family Foundation is not responsible (and cannot be) for User Content, the quality, safety or medical advice in any way or form.  The Frankfort Family Foundation makes no representations about any medical treatment recommendations, diet, or proper care of PKU. All impacted patients should work in collaboration with a trained professional such as a geneticist, dietician, doctor, or counselor. The Frankfort Family Foundation, in the event that you have a dispute with one or more users, you release The Frankfort Family Foundation(and our agents and employees) from claims, demands and damages (actual and consequential, direct and indirect) of every kind and nature, known and unknown, suspected and unsuspected, disclosed and undisclosed, arising out of or in any way connected with such disputes. While The Frankfort Family Foundation reserves the right in its sole discretion to remove Content, postings, or other material from The Frankfort Family Foundation from time to time, The Frankfort Family Foundation does not assume any obligation to do so and to the extent permitted by law, disclaims any liability for failing to take any such action. In addition, note that there are risks, including but not limited to the risk of physical harm, of dealing with strangers, foreign nationals, underage persons or people acting under false pretenses. You assume all risks associated with dealing with other users with whom you come in contact through the Website. We are under no obligation to, and generally do not, control the information provided by other users. Other people’s information may be offensive, harmful or inaccurate, and in some cases could be mislabeled or deceptively labeled. Use caution and common sense when using this Website.

If you are a California resident, you agree to waive California Civil Code d1542, which says: “A general release does not extend to claims which the creditor does not know or suspect to exist in his favor at the time of executing the release, which if known by him must have materially affected his settlement with the debtor.”

You use this site at your own risk. We do not in any way warrant that the website will operate without error, or that the website and its server(s) are free of computer viruses or any other harmful code. Thus we are not responsible for any damage to your equipment, computer or person from the use of this site. To the fullest extent of the also disclaim all warranties of any kind. We provide our site on an “as-is” basis. The Frankfort Family Foundation make no warranties about the accuracy, text, graphics, links, software, material, services provided or warrantees that the site will work or function for an specific period of time.


Disclaimer of Consequential Damages

The Frankfort Family Foundation, its suppliers or any third party on the website shall never be liable of any damages without limitation incidental and consequential, lost profits from lost data or interruption of service, negligence resulting from the use, or inability to use our site weather based on contract, tort, and any legal theory, and or whether or not The Frankfort Family Foundation is advised of the possibility of such damages.  The Frankfort Family Foundation may at times contain links to third party websites. These links are provided solely as a convenience to you and not as an endorsement by The Frankfort Family Foundation of the contents on such third-party Websites. The Frankfort Family Foundation is not responsible for the content of linked third-party sites. Access Linked third-party sites at your own risk!



All donations paid are 100% non-refundable. All donations are quoted in U.S. dollars.  

Indemnification & Notification

You from your direct or indirect use of the Site or our Services, and for any violation of the Terms and Conditions herein (or content violations) agree to hold harmless and indemnify The Frankfort Family Foundation, its affiliates, officers, directors, partners, and employees from any and all third party claims, demands, legal letters, proceedings and any losses, liabilities, damages, costs, payments or expenses, including reasonable attorneys’ fees. If you believe that you are entitled or forced to act contrary to this Agreement under any law, you also agree to contact us in writing or email and provide us with a comprehensive written explanation of your reasons for your belief. You agree to provide 30 days before you act contrary to this Agreement. We are not obligated to do so, but may consider alternative solutions to the situation to help you.



The Frankfort Family Foundation reserves the right, at its sole discretion, to pursue all of its legal remedies, including but not limited to deletion of your postings from this Website and immediate termination of your registration with or ability to access the Website and/or any other service provided to you by the Company, upon any breach by you of these Terms and Conditions or if The Frankfort Family Foundation is unable to verify or authenticate any information you submit to the Website registration with or ability to access the Website.


Limitation of Liability

The aggregate liability for The Frankfort Family Foundation to you for all claims arising from the use of the Materials is limited to $95.


Laws, Jurisdiction

Please note: if you access our Website at your own risk and you are responsible for compliance with the laws of your jurisdiction. The Frankfort Family Foundation makes no claims that the Materials in our Site may be lawfully viewed or downloaded outside of the United States. Access to the Materials may not be legal by certain persons or in certain countries.

Our Terms and conditions are governed by the substantive laws of Delaware, without conflict of laws principles. Jurisdiction for any claims arising under this agreement shall lie only with the state or federal courts within Delaware. If any single Term or Condition is to be found invalid by any court having correct jurisdiction, invalidity shall not affect the validity of the remaining provisions and no waiver of any term of these Terms and Conditions shall be deemed. 



If you have any questions or concerns about the above terms of this Use Agreement please contact:

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