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PKU Stories

Finding Inspiration in Every Turn

Are you a person affected with PKU, a caring friend, sibling, parent or just have an inspirational story involving rare disease? Tell us about it in text, video or pictures. We'd love to hear from you, meanwhile check out what's here! 

Writing by the Water

PKU Animated Videos

Check out 'The Low-Phe Life', an animated documentary series by Kurt Sensenbrenner, that brings real life PKU stories to the screen with light-heartedness and a fresh perspective.

The Low-Phe Life: The Stain
02:05
The Low-Phe Life: The Box
03:15
The Low-Phe Life: The Trip
03:52
The Low-Phe Life: The Test
02:19
The Low-Phe Life: The Taste
02:54
The Low-Phe Life: The Conversation
02:54

Your Stories

We believe in curating stories from our community of PKU to deliver inspiration, collaboration & hope for what's next, share yours with us here. frankfortfamilyfoundationpku@gmail.com

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